PDA

View Full Version : Twisted pelvis - Much trouble!



expatient
05-07-2006, 08:46 PM
Do you have pains in your lower or upper back, buttock or leg? Do you have muscle stiffness or even spasms in your back, leg, neck? Headacke? Ischias? Radiating leg pain or tingling? Piriformis problems?

And doctors don't know what is wrong with you? They blame your scoliosis, curvatures, bad posture, weak muscles, short leg,...


Wellcome to world of SIJD patients! There are millions of us and many doctors don't even believe we exist...
http://personal.inet.fi/koti/faro/Selkasivut/Others.html

For me to get help took about 25 years. During that time I had about 40 useless visits in about 20 doctors, had many X-rays, MRIs and countless amount of blood and pee tests? They were all useless and expensive!

I got some help from about 20 visits to few physical therapeutists (mainly from acupuncture), about 15 visits to a chiropractor and about 30 visits to a naprapath. But the help was only temporarily? Still it kept me alive!

Finally after 15 years of chronic back pain, leg numbness, headaches and many more nasty SIJD-symptoms I found a doctor who knew what SIJD is and how to correct it.

And there are many others like me:
"I have been recently diagnosed with sacroiliac joint dysfunction. I have had a lower back problem for 12 years and someone finally diagnosed me." - pkchop01, Posted 03-15-2005
http://www.healthboards.com/boards/showthread.php?t=263276&highlight=bextra

"After 7 yrs of chronic sciatic pain, multiple rounds of conservative treatment, and numerous visits to neurosurgeons and physiatrists, I have just gone to a chiropracter for the first time and was diagnosed with Sacroiliac Syndrome.- Why dont doctors take it a step further to assess for this???" ? goldilox, Posted: Thu Oct 23, 2003
http://badback.com.au/phpBB2/viewtopic.php?p=839


What is it?
Twisted Pelvis, Malaligned Pelvis, Sacroiliac Syndrome, SI Joint Dysfunction, SI Joint Syndrome, Pelvic Inequality, Upslip, Anteriorly Rotated Innominate, Rotated Ilium, Sacroiliac Joint Sprain,?

"Each year millions of people suffer with low back pain. Lower back pain is very common and may persist anywhere from a few months to several years. Many times the source of low back pain can be caused by malalignment of the sacroiliac joint (SI joint) resulting in a sprain. This condition can often remain undiagnosed for several years if your health care professional is not trained to identify the signs and symptoms of a sacroiliac joint problem..."
www.sidysfunction.com

Even J.F. Kennedy seems to had SIJD, but doctors didn't understand it then, they don't understand it now. Most of them don't believe such a disorder even exists...
http://www.newlifejournal.com/June2005/sims_short.shtml

"I wonder if there are few doctors would diagnose anyone with an SI joint issue. It seems to be something pts will term a patient as having, but I wonder if doctors are aware of this issue. I only wonder based on my own experience of having a brother in law as an orthopedic doctor and scratching his head at the idea of having an sijd. How can that be when the SI ligaments are the strongest in the body, he wonders."
-SaraG
http://tipna.org/forum/viewtopic.php?t=1142&start=0&sid=871fec8cbd0ae665f17f02f54067d1f0

"Recognizing that very few physicians are trained in diagnosing pelvic joint dysfunctions, my judgment is that these are the most frequently amisdiagnosed (or nondiagnosed) conditions in the United States, effecting millions of patients annually."
Orrin Mann MD, MPH.
http://www.chronicprostatitis.com/epidid.html

And how many patients in world wide? I?d say hundreds of millions of them?

"There is very little written about the Sacro-Iliac joint (S.I.) in medical books on backache. As Orthopaedic and Neurosurgical residents are not taught to consider S.I. dysfunction as a cause of back pain, it is not surprising that surgeons know little of diagnosis and treatment."
Arnold Graham Smith, M.D., F.R.C.S, April, 1999
http://www.dcmsonline.org/jax-medicine/1999journals/april99/sacroileac.htm

No-one listens to us patients..?

"A chiropractor I saw told me this was the cause of my pain but an orthopedic doctor, neurologist, and neurosurgeon told me it wasn't. It turns out I really had sacroiliac joint dysfunction due to loose ligaments on those joints. " -Silvia
http://marge.com/hypermobility/messages/55/536.html?999315320

"Well, it can be quite difficult to get SI J problems diagnosed & recognised. You see, so many Drs & Specialists don't believe that this joint can move at all let alone move & cause pain. I was first diagnosed by an excellent physio who then wrote a report to the Drs & Specialists I was seeing at the time. My GP took it on board to try to find out more about it, his wife also being a physio, was able to explain it more fully to him, so he has been very sympathetic, but the Orthopaedic specialist I was seeing at that time had not been long in the field & had no idea nor did he want to listen.? ? jules, Posted: Fri Oct 07, 2005
http://www.badback.com.au/phpbb2/viewtopic.php?t=7&start=10&sid=8958fc124c66f77741cb9f087d4dfb33

And hundreds of similar stories exits, but no doctor wants to listen? :(

Luke
05-07-2006, 11:23 PM
So what are you trying to sell? I don't want any...

expatient...
06-07-2006, 04:23 PM
So what are you trying to sell? I don't want any...
Sell? I don't sell, I tell. Over 90% of low back pains and many other pains and disorders are because of twisted pelvis and dislocated SIJ called SIJD (Sacroiliac Joint Dislocation/Dysfunction)

And yet no doctor regognizes it. Most of them don't believe it exists! And yet there are thousands of patients in Internet foorums telling their stories and asking what is that SIJD they have finally being diagnosed after many years of pains and after seeing many incompetent doctors and experst...

Luke
07-07-2006, 01:09 AM
Still sounds like you're trying to sell something...

expatient..
09-07-2006, 12:08 AM
Still sounds like you're trying to sell something...
Sorry, I don't. Only treatment for SIJD is to find someone who knows how to correct it by pushing it back! And I am not selling the information, I am telling about it.

For me it took 15 years to get the right diagnosis. I hope others wil get it sooner. I lost 10 years of my life because of bad pains...

Flipflop
17-09-2006, 06:10 AM
Thank you expatient for all the info you have posted. I am sorry you have suffered so long without help and appreciate you now helping others with your knowledge. I suffered trauma to my spine in 2003. My spine was twisted at the waist and my neck was stretched backwards. It resulted in my spine being out of alignment. I practiced yoga for twenty years and tai chi for six, so it was obvious to me, but not to the doctors. I have traumatic spondylolisthesis, short leg syndrome, plexus injury to my neck, sij pain, knee, heel and foot pain, sciatica, muscle wasting and my trunk has shortened etc,etc ...... phew! I'm in need of more info about traumatic spondy (L5/S1) any help with this would be much appreciated!

Mischap123
21-09-2006, 10:27 PM
Flipflop, What do you want to know about your spondy? Firstly, what grade is it? When and how did it occur? What symptoms do you get?

matu007
15-11-2006, 02:08 PM
EXPATIENT:

DO I HAVE SIJD. i THINK SO, I HAVE THE FOLLOWING SYMPTOMS:

1. When i lie on my right side, i feel the muscles in
my right buttock get tense (or dense..whichever is the
proper term). I relate this to the "tightening of the
long posterior sacroilliac ligament".

2. My lumabar area sqeaks and pops all the time
especially when i lie on the right side, deep in the
buttock. Feel like the right buttock gets tensed up as
if the lumbar spine is stuck or something into the
right buttock (as accurately as i can describe).
Occasionally when i back bend i hear a very loud
popping sound.

3. Back bends feel restricted on the right side. As if
there is an obstruction when i try to bend back.

What do you think and how should i proceed. I am in the USA right now...

expatient
30-11-2006, 08:39 PM
Thank you expatient for all the info you have posted. I am sorry you have suffered so long without help and appreciate you now helping others with your knowledge. I suffered trauma to my spine in 2003. My spine was twisted at the waist and my neck was stretched backwards. It resulted in my spine being out of alignment. I practiced yoga for twenty years and tai chi for six, so it was obvious to me, but not to the doctors. I have traumatic spondylolisthesis, short leg syndrome, plexus injury to my neck, sij pain, knee, heel and foot pain, sciatica, muscle wasting and my trunk has shortened etc,etc ...... phew! I'm in need of more info about traumatic spondy (L5/S1) any help with this would be much appreciated!
If you have short leg it is most likely not real but a symptom that you have something wrong in your pelvis.
If you have sij pain, knee, heel and foot pain it is most likely a symptom that you have something wrong in your pelvis.
If you have sciatica, muscle wasting and my trunk has shortened it is most likely a symptom that you have something wrong in your pelvis.
If you have spine being out of alignment it is most likely a symptom that you have something wrong in your pelvis.
And finally, when you have both SIJs subluxated you will get L5-S1 spondy. When a good therapeutist corrects your SIJs that spondy will most probably disappear. I have seen it happen to 3 patients.

Nicholas
01-12-2006, 03:33 AM
So what are you trying to sell? I don't want any...

I agree, it does look like you are trying to sell something.
But is does sound like you have had a lot of trouble. You must have been seeing real, experienced doctors. Blood and pee tests aren't going to show what is the cause of back pain.

expatient
01-12-2006, 05:51 PM
I agree, it does look like you are trying to sell something.
But is does sound like you have had a lot of trouble. You must have been seeing real, experienced doctors. Blood and pee tests aren't going to show what is the cause of back pain.
Like I said (or did I forget?), back pain and ischias were only small part of my problems. Others were breathing problems (asthma test negative), heart problems (ultrasound ok), headaches, migrens (brain mri ok), occasionally leg weaknes (neural impulse test ok), shoulder pain (ultrasound ok), cold arm and poor blood circulation in hands -> thorax outlet syndrome diagnosed, tiredness, dizzyness. And I have been doing a lot of sports all my life. I was good fit, non smoker, normal weigth,... Nothing was wrong according to top medical doctors (MD PTs, doctors, neurologians, orthopedians, PTs..)

Only chiro and naprapath told me I had something wrong in my pelvis but didn't say what, and they told I had hypermobile spine... Doctors never even examined my pelvis! They did say I had scoliosis, lordosis and short left leg (1cm). Those were found about 22 years ago as I was 13yrs old. But they did nothing... they never examined where those came from!

Everything is ok now after 15 years of pain. What happened? I got my pelvic joint subluxations corrected. There had been problems since I was a child, but no doctor even examined me.

And there are millions like me who haven't found help...

Orrin Mann MD, MPH, Medical Director Department of Occupational Health Multicare Associates of the Twin Cities Rosedale, MN
Journal of Occupational and Environmental Medicine Volume 40 * Number 5 * May 1998 Letters to the Editor
Pelvic Joint Dysfunctions (http://www.chronicprostatitis.com/epidid.html)
"Recognizing that very few physicians are trained in diagnosing pelvic joint dysfunctions, my judgment is that these are the most frequently Amisdiagnosed (or nondiagnosed) conditions in the United States, effecting millions of patients annually."

Nicholas
01-12-2006, 06:47 PM
Sounds frustrating.

Flipflop
07-12-2006, 06:34 AM
Flipflop, What do you want to know about your spondy? Firstly, what grade is it? When and how did it occur? What symptoms do you get?

Hi Mischap....

It is rather a sad and personal story!
I was a random victim of crime. On my way home with my child, I was attacked and abused for over five hours.

The injuries were sustained by being held down, with my spine twisted at the waist, my shoulder and arm held and stretched in a position which would not normal for the body to be in. My neck was stretched backwards to almost snapping point.
The doctors said they could see no damage, but they only x-rayed my neck. I knew my spine was out of alignment and struggled with pain, which my doctor kept saying it was stress related. I gave up with them after 10 months and went to a private clinic.

It was confirmed my spine was out of alignment at the waist, thoracic and neck area. I had spinal manipulation treatments over a two month period. It floored me. It put injury on top of injury. My pelvis is still unaligned. I have a brachial plexus damage and now flatening of my spine. It was grade two, but I think it may be higher than that now. I am waiting to see a consultant. My physio, who is fantastic, has stopped all treatment (other than sitting on my gym ball) until I see the consultant.

I know my pelvis is out of alignment, which is possibly the cause of some of the referred pain. (knee & foot drop)

If the doctors had cared to investigate my symptoms, I would have known I had spondy and not went to the private clinic, I kinda kicked up a stink and now I am dealing with closed ranks! They claim I have always had it!
It is clear to see I have a step in my spine, I am quite sure that if I had this prior to the incident I or others would have been aware of it.

I cannot lie flat on my back without knees bent and pillows. I have still never had any type of scan, it happened in Jan 03!

I had an active life prior to this and I so miss it. Its a scan I need. Please see myother posting for a list of symptoms, chronic sciatic pain is the worst!

Many thanks for reading my posting, any input it always welcome, with kindness .... Solstice.

expatient
07-12-2006, 04:53 PM
I know my pelvis is out of alignment, which is possibly the cause of some of the referred pain. (knee & foot drop)
You might have at least other SIJ subluxated.


If the doctors had cared to investigate my symptoms, I would have known I had spondy and not went to the private clinic, I kinda kicked up a stink and now I am dealing with closed ranks! They claim I have always had it!
Yes they claim it is a disease. It is not. And can be corrected with manipulation. But ofcourse not all manipulators know how to correct it...

Few weeks ago I interviewed one 55yrs man, who had experienced some violence. It was 18 years ago. He had had a lot of pains since that. He got also spondy. Top specialized doctors of orthopedian said nothing can be done... He had been on chiro and naprapath, but didn't get much help. Then after 18 years of pain he found a healer, who corrected his SIJs and spondy. No more pain at all. Medicine world is so lost...

dvince
16-02-2007, 04:55 PM
OK, thanks for info, although I knew already about SIJD .
The ONLY problem is that I can't get any doctor, chiro or anyone who can adjust SIJD.
I live in Slovenia (Europe).
If there is any "list" of doctors in Europe who can treat SIJD please let me know where to get it.

Thanks.

redheadPilates
21-02-2007, 12:43 PM
I have a question ... Does anyone know of a treatment for pelvic upslip through PT and/or Pilates rehab?

expatient
21-02-2007, 09:27 PM
I have a question ... Does anyone know of a treatment for pelvic upslip through PT and/or Pilates rehab?
Upslip=SIJD.
If you have only other side SIJ subluxated you might get help from these:
DonTigny's self help instructions (http://www.kalindra.com/rounds.pdf)
Those exercises have helped few. But for those who have both SIJs subluxated it can cause more pain...

With pilates, yoga and other you can excercise deep muscles that usually cause the pain. But for subluxations they don't much help...

expatient
21-02-2007, 09:29 PM
OK, thanks for info, although I knew already about SIJD .
The ONLY problem is that I can't get any doctor, chiro or anyone who can adjust SIJD.
I live in Slovenia (Europe).
If there is any "list" of doctors in Europe who can treat SIJD please let me know where to get it.

Thanks.
Do you have Yumeiho (http://www.yumeiho.pl/o_terapii_en.html) in there? It seems good.

glenhaven
15-04-2007, 01:35 AM
EXPATIENT -- you are totally correct -- you offer freedom and they say "trying to sell" = rude ignorant people -- they can keep their pain --- I had the same for 39 years and now am well also.

Here is the free home program to fix the SIJD --
http://www.kalindra.com/Dontigny/homeprogram.pdf

http://www.kalindra.com/faq.htm

This will fix SIJD -- Glen -- oh and it is free

SIJD
25-05-2007, 10:16 PM
Do you have Yumeiho (http://www.yumeiho.pl/o_terapii_en.html) in there? It seems good.

When my back first went I went to see an osteopath who kept clicking my SI joint back in place. I had about 3 sessions and had no pain but then I carried on as normal and ended up with the same problem a week later. I went back to see the osteopath who made the problem worse. He said I had SI joint Dysfuction but he didn't understand why it kept "coming out" again. I wasn't doing anything by this time as I was too sscared to move.

I then decided to go to an orthopadic surgeon who diagnosed a bulging disc at L5/S1. I had 8 months of physio which helped but very slowly. I had a relapse before Xmas and went back for scans this time (everything from MRI to Bone Scans to ultrasound to a sitting MRI etc.) He could not find what was wrong and said his bulging disc diagnosis was wrong. I mentioned SI joint so he relunctanly referred me for an injection to see if that cured the pain. It did and so he referred me for further injections. I was very uncomfortable with this as I felt that I needed to find the root cause of the pain as I see pain as a sign something is wrong and just covering the pain was not going to find me a solution.

By chance someone gave me the name of a person they had seen and he has worked wonders. I bought a backchamp from him - www.backchamp.com as he said the main problem with my osteopath was that he wasnt teaching me how to manage my own problem.

I have had a few setbacks (tripping up on the curb etc) but I am getting there after a nightmare year.

Anyway I just wanted to ask whether you have managed to correct your problem permanently and able to live a normal life playing sports etc?

grub7270
04-03-2008, 01:43 PM
For the last 2 weeks i had a pain in my hip thinking it was a hip joint but i have recently had an xray and the hips are fine nad my husband had a look at my posture and straight out he said that my pelvis is twisted and just from looking from the xray he can tell ,,now he is no doctor but i do trust him as he has problems in his back as well, Tomorrow i also have a ct scan to see what is wrong with the lower back,,the problem is the pain is not in my back it is in my left hip as like someone has got my hip and pushed it up and out and it sometimes it is very painful ,now i dont know if it is my back or hip. My doctor says it is not my hip as it is fine but the leg movement is very limited, sometimes i can walk and its fine but then it plays up and that is it for the rest of the day its sore and very painful ,,,,I am seeing my doc tomorrow after the ct scan to see what he thinks as well....if anyone would like to comment then you can and let me know on what you think as well. :)

cclmons84
28-03-2008, 10:52 PM
about a year ago i started having pain in my left side of my hip to this day it has not stoped:( i have gone to many doctors and all they have told me is that i need mental help or its in my head or im addicted to narcotics and i just am trying to seek some out i have no help with this . SIJD > is a very painful thing there has to be some way to fix it out there but to this day with tones of research i still cant get it fixed and no doctors beleive me i have had ct mri and i am going to tell the doctor to do an x-ray on me if he will. but i just wanted to write to you guys and tell you that i feel you and know what your going through i deal with this every night. My mom does not believe me Ether because im only 23 and cant have this kind of thing .

Stick in there someday we will find a fix for it.

Thanks
Chris

expatient
21-08-2008, 03:53 AM
Anyway I just wanted to ask whether you have managed to correct your problem permanently and able to live a normal life playing sports etc?
Yes, but it took 5 times to get corrected. Sometimes it held 1 day, sometimes 3 weeks. Then I learned the reason why it kept coming out. I was sitting in my car. Then I put a towel under my buttock and that helped. It's been over 3 years now without back pain.

dishdope
25-03-2009, 04:03 PM
Hi expatient,

Thanks for starting such an informative thread:)

I was diagnosed with SIJD today by my PT. She "corrected" it today, the first time I ever had a SIJD correction. I've had lower back/butt pains in my right side for the last 6 months. Sometimes the pain goes down my leg, but its not bad pain by any means, did you experience this at all?

I've had X-rays done which checked out ok by my doctor. I'm schedualed for MRI's next month.

Heres my X-ray pics if you are interested, any imput on them would greatly be appreciated. Can X-rays help diagnose SIJD?

http://www.flickr.com/search/?q=ct%20pictures&w=33553426%40N07

Since she has corrected my pelvic, I do feel alot better... I think. The next few days will be the real test. When she "corrected" my SI joint, it didn't take very long at all. She got down at eye level with my pelvis, put one finger on the front and one on the back of my pelvis.

Then had my lay down. Then she puched on the top on my pelvis towards the ground, then she pushes on top of the illiac crest towards my feet and that was it. Is this sufficient? Considering on Richard's DonTigny's website he says to adjust it a few times, from left to right and back again.

My PT just did the right (bad) side and didn't even touch my left SI joint.... Isn't she suppose to do both sides?

Hope to hear from you expatient since its been awhile from your last posted:)

dishdope
26-03-2009, 02:10 PM
Hey Expatient,

Thanks so much for starting this very informative thread:)

I have had lower back pain for 6 months now. I have got an X-ray which has been cleared by my doctor and I have an MRI next month. The pain is in the lower right side about 2-3 inches from the spine and is right on the crest of the illium. It feels like a pulled muscle and the pain moves into my butt and across to my hip area. Sometimes I get these little pains down my leg to my foot but nothing that bad at all, did you get these little pains down your leg at all?

For the past 2 months I've been seeing a couple PT. The first lady didn't help me at all and certainly didn't adjust my pelvis at all. But she did say that my left joint is doing nothing which makes my right joint do all the work and in turn cause the pain. The lady I'm seeing now is actually adjusting the pelvis and my back does feel 100% better. I'm just to scared to really test it out, if you know what I mean. It's only been 2 days since I've had my first pelvic alignment. How do I know the SI is in the proper position?

Currently I'm really happy to finally have some answers to my LBP. I have this little rig up for my computer chair which transfers the weight off my joints and on to my hamstrings. It's just a steel pole with a towel around it, works really good:) How do I know my SI joint is in alignment? Just by if I feel pain or not? I'm not sure yet how to put the joint back into place myself because my PT hasn't showed me that yet. I'm so new to this SIJD thing.

Is there any advice for a fellow SIJD patient new to the game? How easy is this to correct? And I'm sure theres many variables to that question... I'm 28 and my back pain never got that bad so I'm hoping I caught it early enough. Also I'm in good shape (but slowed down allot because of this BP), only 165lbs at 5'9.

I hope to hear from you soon Expatient and any info you have for me would be greatly appreciated:)

jamesjoyce
18-07-2010, 08:23 PM
Yeah I've had a twisted pelvis for since I was 10. My dad screwed me up. Always end gaining. Now that I'm retired I don't have to play that game. So my advise to you is don't follow their rules. You have to stop EVERYTHING. Just imagine yourself the most popular person in high school. Everything handed to you. Do the Alexander Technique thing. Forget your past. You've done everything wrong don't you know. So from this point lengthen your spine and take tramodol. Forget what you've done in the past. Do you for a moment think that Blanca Vlasic, Elton John, Paul McCartney, J Lo, Ringo Starr, (pick a great person) thinks like you? Do you? Of course not. They have dropped their baggage of sour thought or never had it to begin with. Oh maybe a little but not to the extent that you have the thoughts of the sour people. Ha. Give up trying to change the world. Forget the spirituality that you know. It's there of course but you have to drop all the crap that got you where you are today. Put your pants on begining with the other foot. Go down the stairs begininng with the other foot. Fold your hands differently. Lay down on your back with it lengthened. Don't bother regarding the news. That's a ploy to get you to care and emote like you used to. Drop your old friends. They want you like you used to be. They need you to lean on and push you down. Oh you can do it for them, stay the way you are, but why? Change baby, change.
The pelvis tells everyone what you are. Probably sexless. You need to lengthen your spine and lengthen your lat and trapizee muscles. Those are the culprets that are twisting your pelvis. Don't you know that getting squashed emotionally and physically has screwed you up. Get Rolfed. :cool: