Does anyone else have dysplasia?

[Queen of the Twist]

The more I read on the hip forums, the more I learn about FAI. But I haven't seen many people mention dysplasia. That is my diagnosis from 4 years ago with Xray. It has lead to OA and now possibly labral tear.

Am I the only one with dysplaia in this forum?

[rachael]

Hi again QOTT

I to have bilateral hip dysplasia my consultant reakons i was born with it. He also told me that people with dysplasia are more prone to labural tears and OA.

lOVE RACHAEL

[Queen of the Twist]

Well what'y know, you too! I didn't know that. I read it occurs in about 4 out of 1000 babies. Lucky us! We were born too late for the modern diagnostics they do at birth along with current treatment.

[rachael]

Hi,

I have to laugh as when i told my mum about my condition she felt as though she had neglected me at birth and she was all worried and upset. I put her mind at rest its not her fault, i have had no signs or symptoms until the last few years.

Mums do worry, dont they! Now shes panicing about me having surgery!!

Yeah lucky us we in this together,


Rachael

[focus_911]

yep, I also have bilateral dysplasia which I am having corrected on my right side in a month.

[Queen of the Twist]

Hi focus, thanks for responding. My right side is much worse but both sockets are shallow. I read where it is most common in first born females and on the left side. I am the only female, I have an older brother.

You know what Rachael, I have short 'big' toes and when I was about 10 my mom asked if I wanted to have them surgically lengthened. (I'm not even sure you can do that!) I said I didn't want to. So, I know she was concerned about my 'anatomy.' When I read about the modern diagnostics and correction for this I did briefly feel angry that 'she' didn't 'do' something! Not that anyone even knew back then, but it occur to me. Turns out my nephew did have his hips corrected for this at birth. He's in his 20's now. What side is yours?

[Hekate01]

I had the cast on when i was a baby so i wouldn't be able to walk properly, but problems have only kicked into play in my late 20's. And it was a fall and spraining my left ankle that resulted my right hip coming under added pressure. Only got CDH in my left hip and it's a lot smaller in lenght too. x

[jodieh]

Hi
I too had a cast for six months when I was a baby for bilateral dysplasia, and only been when I hit mid 20's that I've started having problems, initially with my left hip, which is still by far the worse, but right hip not so good either now. It seems there are some unlucky ones that have residual dysplasia despite treatment as a baby, still if I didn't have it treated as a baby I wouldn't be walking at all as I had no sockets, but would have been nicer to be one of the 996 'normal' babies.
Jodie

[Hekate01]

Hi
It seems there are some unlucky ones that have residual dysplasia despite treatment as a baby, still if I didn't have it treated as a baby I wouldn't be walking at all as I had no sockets, but would have been nicer to be one of the 996 'normal' babies.
Jodie
So true i would not be as active as i have been throughout my childhood had i not been treated with a cast. Shame doc's didn't notice until i started to try and walk.
Damn my drunken fall 2 years ago that brought all this to a head!!
I can't wait to be able to shave my own legs again! And snowboard i've missed that too x

[jodieh]

Yep, I welcome those days when I don't have to ask others to help shave, put shoes and socks on etc. Still you seem positive that you will snowboard again, I was active but I'm starting to doubt that I'm gonna see them days again?
Are you waiting for treatment? If so, for Labral Tear or Osteotomy?

[Hekate01]

Not even sure what surgery i'm having except i'll be paitent 21 as it'snew to stafford england and it's done using z-plasty. He really didn't go into too much detail. I'm trying very hard to be positive,but most days it almost impossible to be honest. But i've been semi prepared since i was a baby. I'm lucky it's not a full replacement yet as left hip has hardly anything holding the joint and it's been snapping over 20 years!! But one of the best snowboarders i've ever seen have either been in their 70's or only had 1 leg? I'm thinking wow if they can i can. ( whether i believe it or not depends on how many tablets i've had!!)

[oscarsmum]

Hi
I had open reduction at 18months when I had a plate put in my right hip for CDH and was in a cast for 6 months. I didn't have anymore problems until about 3 years ago when I was 35. Until then I ran, skied and did all sports as a child which I couldn't have done if I hadn't had that surgery so I do consider myself lucky to have had a pain free childhood but would love to be able to all the things again that I used to take for granted.
It helps to know that others are going through similar things , I am so glad to have found this board.
Kate x

[jodieh]

Does dysplasia cause subchondral cysts, found out yesterday I have one on my right femoral head, which is supposed to my 'good' hip!
Does anyone know if these cysts cause pain and symptoms similar to labral tears?
Thanks x

[oscarsmum]

Hi Jodie
I have an acetabular subchondral cyst that my consultant said was caused by extra stress on one place of the socket due to dysplasia instead of the weight being distributed evenly through the joint as it would with a normal hip.
Hope this helps
Kate xx

[oscarsmum]

Jodie
Have you managed to find anything out about subchondral cysts and whether they cause pain?I think I read somewhere that a subchondral cyst is usually the result of a labral tear because the fluid that destroys the bone and creates the cyst cannot get to the bone unless the labrum is torn in the firstplace. Not sure if this is correct or not, but would like to know whether my pain is caused by the dysplasia, the cyst or a tear or a combination of all three. Any answers anyone? I wil be definatley asking my consultant next time I see him.
Kate

[soccermom]

maybe wrong, but i think the cystic formation or changes is often due to the fai and the hitting of the bone against bone....

[jodieh]

Hi Kate
I think we must have read the same site! I think cysts are caused from an uneven weight distribution, in my case not enough cover on the femoral head, so the bone takes too much stress causing part of it to destroy and fill with fluid, and I think they go hand in hand with labral tears as they too are casued by uneven stresses within the joint.

I did get a second opinion yesterday from a specialist but he didn't talk about the cyst as this is in my good hip, I think he was trying not to freak me out too much as it turns out the scope that I had in Feb shouldn't have been done because it has caused more damage as now I have bone hitting bone in my joint rather than a damaged labrum, which explains the chronic pain I've been experiencing. He recommends that I have a pelvic osteotomy to realign my socket, apparently it faces too far foward as well as being shallow and this is the only surgery that will improve my pain and save my joint(s). Only problem is I live so far away from him I have to have my case put before my local NHS board to approve me seeking treatment so far away.

I'm trying to remain positive as both the surgeon and my GP are supportive in helping get this surgery, it just is going to take sooo long to go through this process again and I really am finding it hard to believe my current surgeon who performed the scope recommended it as treatment in the first place - and I self-funded the scope thinking this would solve my issues and the thought of a ten month wait on the NHS filled with despair. Simply can't afford to carry on funding treatment as this next surgery privately is £10-15K, especially if I might need the other hip done also.

Sorry for long post, just needed to vent frustration, which I'm sure many others are experiencing too!!
Jodie x