tisatashar
11-06-2008, 12:46 PM
Can anyone help by suggesting how to search for info on my wife's problem. The doctors are pretty much useless. Can anyone name the disease/problem etc?
Here's the situation.
At the top of the spine where it enters the skull she regularly has huge pain, just where the 'yellow line terminates in the pic.
She has described the sensation as;
1. An electrical storm like when you go to a science museum and the have a glass ball with a 'charged' rod in the center & its constantly discharging 'lightning' out to the glass wall of the ball.
2. The other description is similar to the 'burning sensation' one gets from prolong contact with such as in a freezer and you are handling ice. Its really painful and feels like you flesh is 'burning'.
3. Like some approached from behind and jammed a hot coal into the base of your skull.
So there you go. Doctors look at the X-Rays & Ultra sounds & shrug their shoulders. Nothing unusual to see. Surely its gotta "have a name".
Any suggestions or fellow sufferers out there?
Here's the situation.
At the top of the spine where it enters the skull she regularly has huge pain, just where the 'yellow line terminates in the pic.
She has described the sensation as;
1. An electrical storm like when you go to a science museum and the have a glass ball with a 'charged' rod in the center & its constantly discharging 'lightning' out to the glass wall of the ball.
2. The other description is similar to the 'burning sensation' one gets from prolong contact with such as in a freezer and you are handling ice. Its really painful and feels like you flesh is 'burning'.
3. Like some approached from behind and jammed a hot coal into the base of your skull.
So there you go. Doctors look at the X-Rays & Ultra sounds & shrug their shoulders. Nothing unusual to see. Surely its gotta "have a name".
Any suggestions or fellow sufferers out there?