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Twisted pelvis - Much trouble!

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  • Twisted pelvis - Much trouble!

    Do you have pains in your lower or upper back, buttock or leg? Do you have muscle stiffness or even spasms in your back, leg, neck? Headacke? Ischias? Radiating leg pain or tingling? Piriformis problems?

    And doctors don't know what is wrong with you? They blame your scoliosis, curvatures, bad posture, weak muscles, short leg,...


    Wellcome to world of SIJD patients! There are millions of us and many doctors don't even believe we exist...
    http://personal.inet.fi/koti/faro/Se...ut/Others.html

    For me to get help took about 25 years. During that time I had about 40 useless visits in about 20 doctors, had many X-rays, MRIs and countless amount of blood and pee tests? They were all useless and expensive!

    I got some help from about 20 visits to few physical therapeutists (mainly from acupuncture), about 15 visits to a chiropractor and about 30 visits to a naprapath. But the help was only temporarily? Still it kept me alive!

    Finally after 15 years of chronic back pain, leg numbness, headaches and many more nasty SIJD-symptoms I found a doctor who knew what SIJD is and how to correct it.

    And there are many others like me:
    "I have been recently diagnosed with sacroiliac joint dysfunction. I have had a lower back problem for 12 years and someone finally diagnosed me." - pkchop01, Posted 03-15-2005
    http://www.healthboards.com/boards/s...ghlight=bextra

    "After 7 yrs of chronic sciatic pain, multiple rounds of conservative treatment, and numerous visits to neurosurgeons and physiatrists, I have just gone to a chiropracter for the first time and was diagnosed with Sacroiliac Syndrome.- Why dont doctors take it a step further to assess for this???" ? goldilox, Posted: Thu Oct 23, 2003
    http://badback.com.au/phpBB2/viewtopic.php?p=839


    What is it?
    Twisted Pelvis, Malaligned Pelvis, Sacroiliac Syndrome, SI Joint Dysfunction, SI Joint Syndrome, Pelvic Inequality, Upslip, Anteriorly Rotated Innominate, Rotated Ilium, Sacroiliac Joint Sprain,?

    "Each year millions of people suffer with low back pain. Lower back pain is very common and may persist anywhere from a few months to several years. Many times the source of low back pain can be caused by malalignment of the sacroiliac joint (SI joint) resulting in a sprain. This condition can often remain undiagnosed for several years if your health care professional is not trained to identify the signs and symptoms of a sacroiliac joint problem..."
    www.sidysfunction.com

    Even J.F. Kennedy seems to had SIJD, but doctors didn't understand it then, they don't understand it now. Most of them don't believe such a disorder even exists...
    http://www.newlifejournal.com/June2005/sims_short.shtml

    "I wonder if there are few doctors would diagnose anyone with an SI joint issue. It seems to be something pts will term a patient as having, but I wonder if doctors are aware of this issue. I only wonder based on my own experience of having a brother in law as an orthopedic doctor and scratching his head at the idea of having an sijd. How can that be when the SI ligaments are the strongest in the body, he wonders."
    -SaraG
    http://tipna.org/forum/viewtopic.php...7f02f54067d1f0

    "Recognizing that very few physicians are trained in diagnosing pelvic joint dysfunctions, my judgment is that these are the most frequently amisdiagnosed (or nondiagnosed) conditions in the United States, effecting millions of patients annually."
    Orrin Mann MD, MPH.
    http://www.chronicprostatitis.com/epidid.html

    And how many patients in world wide? I?d say hundreds of millions of them?

    "There is very little written about the Sacro-Iliac joint (S.I.) in medical books on backache. As Orthopaedic and Neurosurgical residents are not taught to consider S.I. dysfunction as a cause of back pain, it is not surprising that surgeons know little of diagnosis and treatment."
    Arnold Graham Smith, M.D., F.R.C.S, April, 1999
    http://www.dcmsonline.org/jax-medici...sacroileac.htm

    No-one listens to us patients..?

    "A chiropractor I saw told me this was the cause of my pain but an orthopedic doctor, neurologist, and neurosurgeon told me it wasn't. It turns out I really had sacroiliac joint dysfunction due to loose ligaments on those joints. " -Silvia
    http://marge.com/hypermobility/messa...html?999315320

    "Well, it can be quite difficult to get SI J problems diagnosed & recognised. You see, so many Drs & Specialists don't believe that this joint can move at all let alone move & cause pain. I was first diagnosed by an excellent physio who then wrote a report to the Drs & Specialists I was seeing at the time. My GP took it on board to try to find out more about it, his wife also being a physio, was able to explain it more fully to him, so he has been very sympathetic, but the Orthopaedic specialist I was seeing at that time had not been long in the field & had no idea nor did he want to listen.? ? jules, Posted: Fri Oct 07, 2005
    http://www.badback.com.au/phpbb2/vie...cb9f087d4dfb33

    And hundreds of similar stories exits, but no doctor wants to listen?

  • #2
    So what are you trying to sell? I don't want any...

    Comment


    • #3
      Originally posted by Luke
      So what are you trying to sell? I don't want any...
      Sell? I don't sell, I tell. Over 90% of low back pains and many other pains and disorders are because of twisted pelvis and dislocated SIJ called SIJD (Sacroiliac Joint Dislocation/Dysfunction)

      And yet no doctor regognizes it. Most of them don't believe it exists! And yet there are thousands of patients in Internet foorums telling their stories and asking what is that SIJD they have finally being diagnosed after many years of pains and after seeing many incompetent doctors and experst...

      Comment


      • #4
        Still sounds like you're trying to sell something...

        Comment


        • #5
          sorry

          Originally posted by Luke
          Still sounds like you're trying to sell something...
          Sorry, I don't. Only treatment for SIJD is to find someone who knows how to correct it by pushing it back! And I am not selling the information, I am telling about it.

          For me it took 15 years to get the right diagnosis. I hope others wil get it sooner. I lost 10 years of my life because of bad pains...

          Comment


          • #6
            Thank you expatient for all the info you have posted. I am sorry you have suffered so long without help and appreciate you now helping others with your knowledge. I suffered trauma to my spine in 2003. My spine was twisted at the waist and my neck was stretched backwards. It resulted in my spine being out of alignment. I practiced yoga for twenty years and tai chi for six, so it was obvious to me, but not to the doctors. I have traumatic spondylolisthesis, short leg syndrome, plexus injury to my neck, sij pain, knee, heel and foot pain, sciatica, muscle wasting and my trunk has shortened etc,etc ...... phew! I'm in need of more info about traumatic spondy (L5/S1) any help with this would be much appreciated!

            Comment


            • #7
              Flipflop, What do you want to know about your spondy? Firstly, what grade is it? When and how did it occur? What symptoms do you get?

              Comment


              • #8
                Question For "expatient"

                EXPATIENT:

                DO I HAVE SIJD. i THINK SO, I HAVE THE FOLLOWING SYMPTOMS:

                1. When i lie on my right side, i feel the muscles in
                my right buttock get tense (or dense..whichever is the
                proper term). I relate this to the "tightening of the
                long posterior sacroilliac ligament".

                2. My lumabar area sqeaks and pops all the time
                especially when i lie on the right side, deep in the
                buttock. Feel like the right buttock gets tensed up as
                if the lumbar spine is stuck or something into the
                right buttock (as accurately as i can describe).
                Occasionally when i back bend i hear a very loud
                popping sound.

                3. Back bends feel restricted on the right side. As if
                there is an obstruction when i try to bend back.

                What do you think and how should i proceed. I am in the USA right now...

                Comment


                • #9
                  Originally posted by Flipflop
                  Thank you expatient for all the info you have posted. I am sorry you have suffered so long without help and appreciate you now helping others with your knowledge. I suffered trauma to my spine in 2003. My spine was twisted at the waist and my neck was stretched backwards. It resulted in my spine being out of alignment. I practiced yoga for twenty years and tai chi for six, so it was obvious to me, but not to the doctors. I have traumatic spondylolisthesis, short leg syndrome, plexus injury to my neck, sij pain, knee, heel and foot pain, sciatica, muscle wasting and my trunk has shortened etc,etc ...... phew! I'm in need of more info about traumatic spondy (L5/S1) any help with this would be much appreciated!
                  If you have short leg it is most likely not real but a symptom that you have something wrong in your pelvis.
                  If you have sij pain, knee, heel and foot pain it is most likely a symptom that you have something wrong in your pelvis.
                  If you have sciatica, muscle wasting and my trunk has shortened it is most likely a symptom that you have something wrong in your pelvis.
                  If you have spine being out of alignment it is most likely a symptom that you have something wrong in your pelvis.
                  And finally, when you have both SIJs subluxated you will get L5-S1 spondy. When a good therapeutist corrects your SIJs that spondy will most probably disappear. I have seen it happen to 3 patients.

                  Comment


                  • #10
                    Originally posted by Luke
                    So what are you trying to sell? I don't want any...
                    I agree, it does look like you are trying to sell something.
                    But is does sound like you have had a lot of trouble. You must have been seeing real, experienced doctors. Blood and pee tests aren't going to show what is the cause of back pain.

                    Comment


                    • #11
                      Originally posted by Nicholas
                      I agree, it does look like you are trying to sell something.
                      But is does sound like you have had a lot of trouble. You must have been seeing real, experienced doctors. Blood and pee tests aren't going to show what is the cause of back pain.
                      Like I said (or did I forget?), back pain and ischias were only small part of my problems. Others were breathing problems (asthma test negative), heart problems (ultrasound ok), headaches, migrens (brain mri ok), occasionally leg weaknes (neural impulse test ok), shoulder pain (ultrasound ok), cold arm and poor blood circulation in hands -> thorax outlet syndrome diagnosed, tiredness, dizzyness. And I have been doing a lot of sports all my life. I was good fit, non smoker, normal weigth,... Nothing was wrong according to top medical doctors (MD PTs, doctors, neurologians, orthopedians, PTs..)

                      Only chiro and naprapath told me I had something wrong in my pelvis but didn't say what, and they told I had hypermobile spine... Doctors never even examined my pelvis! They did say I had scoliosis, lordosis and short left leg (1cm). Those were found about 22 years ago as I was 13yrs old. But they did nothing... they never examined where those came from!

                      Everything is ok now after 15 years of pain. What happened? I got my pelvic joint subluxations corrected. There had been problems since I was a child, but no doctor even examined me.

                      And there are millions like me who haven't found help...

                      Orrin Mann MD, MPH, Medical Director Department of Occupational Health Multicare Associates of the Twin Cities Rosedale, MN
                      Journal of Occupational and Environmental Medicine Volume 40 * Number 5 * May 1998 Letters to the Editor
                      Pelvic Joint Dysfunctions
                      "Recognizing that very few physicians are trained in diagnosing pelvic joint dysfunctions, my judgment is that these are the most frequently Amisdiagnosed (or nondiagnosed) conditions in the United States, effecting millions of patients annually."
                      Last edited by expatient; 01-12-2006, 05:57 PM.

                      Comment


                      • #12
                        Sounds frustrating.

                        Comment


                        • #13
                          Traumatic spondylolisthesis

                          Originally posted by Mischap123
                          Flipflop, What do you want to know about your spondy? Firstly, what grade is it? When and how did it occur? What symptoms do you get?
                          Hi Mischap....

                          It is rather a sad and personal story!
                          I was a random victim of crime. On my way home with my child, I was attacked and abused for over five hours.

                          The injuries were sustained by being held down, with my spine twisted at the waist, my shoulder and arm held and stretched in a position which would not normal for the body to be in. My neck was stretched backwards to almost snapping point.
                          The doctors said they could see no damage, but they only x-rayed my neck. I knew my spine was out of alignment and struggled with pain, which my doctor kept saying it was stress related. I gave up with them after 10 months and went to a private clinic.

                          It was confirmed my spine was out of alignment at the waist, thoracic and neck area. I had spinal manipulation treatments over a two month period. It floored me. It put injury on top of injury. My pelvis is still unaligned. I have a brachial plexus damage and now flatening of my spine. It was grade two, but I think it may be higher than that now. I am waiting to see a consultant. My physio, who is fantastic, has stopped all treatment (other than sitting on my gym ball) until I see the consultant.

                          I know my pelvis is out of alignment, which is possibly the cause of some of the referred pain. (knee & foot drop)

                          If the doctors had cared to investigate my symptoms, I would have known I had spondy and not went to the private clinic, I kinda kicked up a stink and now I am dealing with closed ranks! They claim I have always had it!
                          It is clear to see I have a step in my spine, I am quite sure that if I had this prior to the incident I or others would have been aware of it.

                          I cannot lie flat on my back without knees bent and pillows. I have still never had any type of scan, it happened in Jan 03!

                          I had an active life prior to this and I so miss it. Its a scan I need. Please see myother posting for a list of symptoms, chronic sciatic pain is the worst!

                          Many thanks for reading my posting, any input it always welcome, with kindness .... Solstice.

                          Comment


                          • #14
                            Originally posted by Flipflop
                            I know my pelvis is out of alignment, which is possibly the cause of some of the referred pain. (knee & foot drop)
                            You might have at least other SIJ subluxated.

                            Originally posted by Flipflop
                            If the doctors had cared to investigate my symptoms, I would have known I had spondy and not went to the private clinic, I kinda kicked up a stink and now I am dealing with closed ranks! They claim I have always had it!
                            Yes they claim it is a disease. It is not. And can be corrected with manipulation. But ofcourse not all manipulators know how to correct it...

                            Few weeks ago I interviewed one 55yrs man, who had experienced some violence. It was 18 years ago. He had had a lot of pains since that. He got also spondy. Top specialized doctors of orthopedian said nothing can be done... He had been on chiro and naprapath, but didn't get much help. Then after 18 years of pain he found a healer, who corrected his SIJs and spondy. No more pain at all. Medicine world is so lost...

                            Comment


                            • #15
                              OK, thanks for info, although I knew already about SIJD .
                              The ONLY problem is that I can't get any doctor, chiro or anyone who can adjust SIJD.
                              I live in Slovenia (Europe).
                              If there is any "list" of doctors in Europe who can treat SIJD please let me know where to get it.

                              Thanks.

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