Hi fellow hip sufferers!
I am 29, female, surfer in the UK and also work in an NHS Cardiology dept - for my sins!
I also have a horrible story - occuring over the last 16 mths - I will try and keep it brief!
Sudden loss of use of left leg - following 2 mths lower back pain - Feb 2005.
A+E ->ambulance to royal orthopaedic hospital - T + L Spine MRI - Normal.
Brain MRI - normal.
In 5 days - under spinal surgeon whilst awaiting transfer to my own hospital where I worked, to rule out a neurological cause.
No neurological cause found - ? psychological - see psychiatrist - whilst an in patient.
I kept telling them my hip kept clicking, leg locked, knee hurt and knee gave way but it felt like it was my hip making knee unstable!! 2 neurologists and 1 psychiatrist - said no way could it be mechanical - it was stress!!!
I begged to be seen by a trauma surgeon who had seen me a few mths previously for back pain. With very bad grace they agreed.
MRI - Hips, thigh and knee - normal - March 2005. The trauma surgeon referred me back to orthopaedic hosp to an orthopaedic surgeon - to exclude a labral lesion in my hip with a view to arthroscopy! I was given a steroid injection - 2 mths relief, after initial agony for 10 days after!
The hip surgeon said it was coincidence I got better - psychological - discharged - told toget on and surf and skydive again and if my hip fell apart he would do an arthroscopy!
After 2 mths - acute hip, groin and knee pain! Trauma surgeon phoned hip surgeon to ask him to see me - he declined - told him to send me to a musculoskeletal physician.
This new doctor - ? SI joint ligament laxity - 4 mths of prolotherapy injections - to not much effect. We then had a "breakdown in patient/doctor relationship" and he refused to treat me - said I was beyond help. Nothing medically to be done - sent home. I was so upset!
Mean while - ongoing physio - muscle imbalance and trigger points - given stretches and joined a gym - got worse!
My GP agreed to send me for a second oppinion to Coventry which I paid for. Told not my back - ? hip! My anger levels raised!
He referred me to Professor Damien Griffin at BMI Meriden Hospital, Walsgrave site, Coventry, UK. Classsic mechanical history, slinical exam - strong suspicion of labral tear.
I paid £968 on credit card for an MR arthrogram (MRI with contrast injection) and 3 plain x-rays - 1 was a lateral view never done on me before!
X-rays = slight bulge in the supero-lateral acetabular rim.
MRa = extensive degeneration of the antero-superior labrum with a degenerative tear.
Paying £3700 for arthroscopy on 22nd June. Plan = debride acetabular labrum and treat any adjacent damage to articular surface, and reshape the area of excess bone in order to relieve impingement! There is also a cyst on head of femur - visible on the plain x-ray.
I AM SO SO ANGRY - AS ARE THE REST OF YOU I GUESS?! I asked why the hip sugeon would not have detected the abnormal shaped head of femur - unless they are specialised in this field it will be reported as normal
I am dreading surgery - but hoping for my life back!!!
After reading most of the messages - I gather that these labral tears are difficult to diagnose and you must have a contrast MRI (arthrogram) - routine MRI likely normal!
I REALLY FEEL MOVED TO DO SOMETHING TO HELP OTHER PATIENTS. My notes are a mess with reference that I may have a psychological problem, etc. I am going to complain and try and get my money back from both of these hospitals - including the one I work in - even if it takes years and I prepared for more debt for a solicitor if I have to - medical negligence I think!
I think there should be labral tear awarness education meeting in every hopital to the orthopaedic and trauma teams, physios, neurologists and psychiatrists! WHAT DO YOU ALL THINK? I also wonder about a patient support group - FOR WHEN YOU DO GET THE DIAGNOSIS - TO TALK ABOUT THESE BAD EXPERIENCES - AGAIN - IS THAT POSSIBLE?
WHO WOULD DO THESE TALKS TO THE CLUELESS DOCTORS AND SURGEONS? WOULD IT BE US - PATIENT LEAD - WITH INPUT FROM THE EXPERIENCED AND RARE SURGEONS?
DOES ANYONE THINK THIS WOULD BE POSSIBLE - MAYBE WITH HELP FROM THIS SITE? OR AM I LIVING IN FAIRY LAND?!
I am keen to here from anyone that feels like I do - email: