Hey iron was you diagnosed with osteitis pubis or something else? Also would like to ask if you are constantly in pain/discomfort or not? And do you mean the second MRI scan showed improvement or it showed the inflammation clearer? Would you recommend getting an MRI scan?
hello, all. i have been suffering for 12 1/2 years. not a typo. 12 1/2 years. was originally told my pubic separation was normal for childbirth and would heal on its own. i went on to deliver 2 more babies without any pain control - i have a high tolerance. therefore, although i had been in agony, i could get through the day with advil, ibuprofen, heat, and ice.
stayed home with the boys right up until my youngest started 2nd grade last year. found the perfect job 10 minutes from our home and 5 minutes from their elementary school. although i worked full time, they allowed a flexible schedule. the perfect situation, right?! i love my job, but it is killing me! you are all familiar with the pain, so i won't go into that...i am a furniture upholsterer and i must climb stairs, i must stand on a concrete floor, i must lift and carry heavy furniture, and i must perform lots of activity that makes me feel like i am going to explode from the pelvis!
i finally decided to push the issue with my primary during the middle of april. she immediately ordered me out of work and put me on pain meds. she ordered an x-ray and referred me to an orthopedic surgeon. one month later, the ortho surgeon diagnosed me with op because the x-ray was so obvious - "never saw op so clearly with a simple x-ray". the bones are so jagged, the ortho resident said the cartilage has eroded. referred to rheumatologist to determine cause of inflammation. saw rheum specialist last friday. confirmed op, and added joint hypermobility syndrome. suspects arthritis. had mri tuesday - still don't have results.
in the meantime, i have been out of work and out of activity. am feeling anxious and depressed lately. why is this such a long process? the ortho resident said this has been so chronic, that i should consider surgery. i'm on board with that because i am ready to get on with my life. now, the ortho surgeon has ordered a corticosteroid injection for friday morning! what?! are you kidding?! i feel like i am getting contradictory information, and the ortho surgeon will not even return communication from my primary. i have a follow - up scheduled with the ortho surgeon for the 25th of this month. i will not leave without a surgery date!
so, that is my story. thanks for listening. thanks for any support...
Wowsers you sound like sooooooo many of us. When i first started down this road 7 yrs ago i was at my wits end, depressed and out of work too, have had 4 surgeries so far, 2 on each side and although each one has been hard and long recovery (i have hypermobility as well) it has been worth it, as i am improving with each one. I would of been terrified if someone had said i would need all this and i have a few more to come, but by doing it one at a time and properly researching the right surgeon (didn't have a decent one at first) it has been totally worth it. Coming on here and finding others that are similar has really helped me, and because of this lovely lot i found the perfect surgeon that totally understood i want to get a fully active life back, possibly snowboard too x
got the best news in 3 months!!! mri is clear - no arthritic cause of inflammation. so, it is on to surgery for me! i meet with the ortho surgeon the 25th of this month. i know we all (including me) want to avoid surgery. however, dealing with this for so long conservatively without results leaves but this one option.
will keep posting with my progress...
im in discomfort all day all night targeted at the very bottom of abdominal region all over but more to the centre and right.
The second scan showed less inflamation but yet hurts me more now even after injections and months of rehab and rest from sport.
I really do question what they know about this.
Yes do get an mri if its OP you have to show the inflamation. The xray can show instability and ultra sound can rule out any hernias.
Iv had em all done many times and im still the same.i got this at 24 and feel like im never ever going to play football again.
Iv really had enough and so depressed now.
i know people that say they can play through it and suffer a few days and have told me the same.
Let me tell you this, im able to tolerate pain massively and i cannot even walk fast with this injury.
This makes me think if i have a much worse case or are they docs simply missing something.
thanks, i wish everyone better i really do
Hard to help people when you don't know where they are from.
If you are from the UK region Alison Rose from Leeds is your best bet. From what I have heard she has fixed many professional soccer players and professional sports players with groin related problem. I have had no experience with her treatments as I am from Australia but past members have with success on this forum.
If you are from Australia Miritis Massage clinic is your place to go. It is just out of the heart of Melbourne about 35km away. I have had experience at this clinic and after years with osteitis pubis and several treatments I have been able to return to sport and play with no pain. There are a few massages there trained to treat OP. I think Garry is having time off at the moment though but Darren and Adam are more than capable to treat you. They have treated many star AFL, soccer, and national and international athletes.
Pat Allen is anther guy from Victoria in Australia who has had great success with treating OP. The only downside to this is he is about a three hour drive away from Melbourne, which can be difficult for those travelling from inter-state and overseas. Again he has many professionals going to see him to be treated. There is no website on him that I could find but a great youtube video.
I would also like to say that I still use a cream called superbalm with I feel has contributed in curing osteitis pubis. I still use it today with tight muscles and the pain does seem to go away with persisent use.
I had OP for about five and a half years so I have had done some reasearch in that time to help me. Hopefully this post helps others rather than looking back into 102 pages of information. But alot of good information in here you just have to locate it and read it.
All the best
finally i got referred for an mri scan! just did some research on this tonight and was wandering if any of you guys had an iv injection before you went in? (im feeling really anxious about it right now) and were you guys allowed to eat and drink beforehand?
congrats on the good news tmom. arthritis is what i fear at the moment - for the past few days ive just been looking up "arthritis foods to avoid" and "anti inflammatory foods". ive also found out that vitamin d deficiency can lead to joint pains. (we dont get much sunlight here in the uk so that might have contributed to my op)
iron, does it feel tender when you prod on the pubis symphysis? (my pains seems to get much worse when someone prods on it) have you tried sleeping with pillows under your knees or inbetween your legs? did you see a rheumatologist? have you thought about seeing a chinese doctor? (ive been using these chinese herb patches for my low back pain which seem to work and zheng gu shui liniment for the op which sort of relieves the pain - you might want to look these up or speak to a chinese doctor) how much are you walking and are you on crutches? how many weeks break did you have between your first and second mri scan?
and thanks for that post flash i will look into alison rose, and might even try see her before she starts working at london for the olympic games.
thank you jazz uk!!! it means a lot to know someone is happy for me...i have read all 102 pages and have spent a lot of time feeling like "i know these people and what they are going through". it is so nice to know that i have a connection with others who understand all of it.
fyi, i am from the northeast usa - minutes from the dartmouth campus (if anyone is familiar with dartmouth college). i have a friend who is a physical therapist specializing in op. she is so discouraged that this condition has been left undiagnosed for so long that it has resulted in complete joint disintegration.
happily, it is not from arthritis - simply a lack of knowledge by the medical community. now that doctors are becoming more aware, i am so pleased to know that i have the surgical option left. i cannot wait to run and jump with my kids! and walk, and sleep, and go to work, ha ha!
best to all!