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  1. #1

    Default Twisted pelvis - Much trouble!

    Do you have pains in your lower or upper back, buttock or leg? Do you have muscle stiffness or even spasms in your back, leg, neck? Headacke? Ischias? Radiating leg pain or tingling? Piriformis problems?

    And doctors don't know what is wrong with you? They blame your scoliosis, curvatures, bad posture, weak muscles, short leg,...


    Wellcome to world of SIJD patients! There are millions of us and many doctors don't even believe we exist...
    http://personal.inet.fi/koti/faro/Se...ut/Others.html

    For me to get help took about 25 years. During that time I had about 40 useless visits in about 20 doctors, had many X-rays, MRIs and countless amount of blood and pee tests? They were all useless and expensive!

    I got some help from about 20 visits to few physical therapeutists (mainly from acupuncture), about 15 visits to a chiropractor and about 30 visits to a naprapath. But the help was only temporarily? Still it kept me alive!

    Finally after 15 years of chronic back pain, leg numbness, headaches and many more nasty SIJD-symptoms I found a doctor who knew what SIJD is and how to correct it.

    And there are many others like me:
    "I have been recently diagnosed with sacroiliac joint dysfunction. I have had a lower back problem for 12 years and someone finally diagnosed me." - pkchop01, Posted 03-15-2005
    http://www.healthboards.com/boards/s...ghlight=bextra

    "After 7 yrs of chronic sciatic pain, multiple rounds of conservative treatment, and numerous visits to neurosurgeons and physiatrists, I have just gone to a chiropracter for the first time and was diagnosed with Sacroiliac Syndrome.- Why dont doctors take it a step further to assess for this???" ? goldilox, Posted: Thu Oct 23, 2003
    http://badback.com.au/phpBB2/viewtopic.php?p=839


    What is it?
    Twisted Pelvis, Malaligned Pelvis, Sacroiliac Syndrome, SI Joint Dysfunction, SI Joint Syndrome, Pelvic Inequality, Upslip, Anteriorly Rotated Innominate, Rotated Ilium, Sacroiliac Joint Sprain,?

    "Each year millions of people suffer with low back pain. Lower back pain is very common and may persist anywhere from a few months to several years. Many times the source of low back pain can be caused by malalignment of the sacroiliac joint (SI joint) resulting in a sprain. This condition can often remain undiagnosed for several years if your health care professional is not trained to identify the signs and symptoms of a sacroiliac joint problem..."
    www.sidysfunction.com

    Even J.F. Kennedy seems to had SIJD, but doctors didn't understand it then, they don't understand it now. Most of them don't believe such a disorder even exists...
    http://www.newlifejournal.com/June2005/sims_short.shtml

    "I wonder if there are few doctors would diagnose anyone with an SI joint issue. It seems to be something pts will term a patient as having, but I wonder if doctors are aware of this issue. I only wonder based on my own experience of having a brother in law as an orthopedic doctor and scratching his head at the idea of having an sijd. How can that be when the SI ligaments are the strongest in the body, he wonders."
    -SaraG
    http://tipna.org/forum/viewtopic.php...7f02f54067d1f0

    "Recognizing that very few physicians are trained in diagnosing pelvic joint dysfunctions, my judgment is that these are the most frequently amisdiagnosed (or nondiagnosed) conditions in the United States, effecting millions of patients annually."
    Orrin Mann MD, MPH.
    http://www.chronicprostatitis.com/epidid.html

    And how many patients in world wide? I?d say hundreds of millions of them?

    "There is very little written about the Sacro-Iliac joint (S.I.) in medical books on backache. As Orthopaedic and Neurosurgical residents are not taught to consider S.I. dysfunction as a cause of back pain, it is not surprising that surgeons know little of diagnosis and treatment."
    Arnold Graham Smith, M.D., F.R.C.S, April, 1999
    http://www.dcmsonline.org/jax-medici...sacroileac.htm

    No-one listens to us patients..?

    "A chiropractor I saw told me this was the cause of my pain but an orthopedic doctor, neurologist, and neurosurgeon told me it wasn't. It turns out I really had sacroiliac joint dysfunction due to loose ligaments on those joints. " -Silvia
    http://marge.com/hypermobility/messa...html?999315320

    "Well, it can be quite difficult to get SI J problems diagnosed & recognised. You see, so many Drs & Specialists don't believe that this joint can move at all let alone move & cause pain. I was first diagnosed by an excellent physio who then wrote a report to the Drs & Specialists I was seeing at the time. My GP took it on board to try to find out more about it, his wife also being a physio, was able to explain it more fully to him, so he has been very sympathetic, but the Orthopaedic specialist I was seeing at that time had not been long in the field & had no idea nor did he want to listen.? ? jules, Posted: Fri Oct 07, 2005
    http://www.badback.com.au/phpbb2/vie...cb9f087d4dfb33

    And hundreds of similar stories exits, but no doctor wants to listen?

  2. #2
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    Default

    So what are you trying to sell? I don't want any...

  3. #3
    expatient...
    Guest

    Default

    Quote Originally Posted by Luke
    So what are you trying to sell? I don't want any...
    Sell? I don't sell, I tell. Over 90% of low back pains and many other pains and disorders are because of twisted pelvis and dislocated SIJ called SIJD (Sacroiliac Joint Dislocation/Dysfunction)

    And yet no doctor regognizes it. Most of them don't believe it exists! And yet there are thousands of patients in Internet foorums telling their stories and asking what is that SIJD they have finally being diagnosed after many years of pains and after seeing many incompetent doctors and experst...

  4. #4
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    Default

    Still sounds like you're trying to sell something...

  5. #5
    expatient..
    Guest

    Default sorry

    Quote Originally Posted by Luke
    Still sounds like you're trying to sell something...
    Sorry, I don't. Only treatment for SIJD is to find someone who knows how to correct it by pushing it back! And I am not selling the information, I am telling about it.

    For me it took 15 years to get the right diagnosis. I hope others wil get it sooner. I lost 10 years of my life because of bad pains...

  6. #6
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    Default

    Quote Originally Posted by Luke
    So what are you trying to sell? I don't want any...
    I agree, it does look like you are trying to sell something.
    But is does sound like you have had a lot of trouble. You must have been seeing real, experienced doctors. Blood and pee tests aren't going to show what is the cause of back pain.

  7. #7

    Default

    Quote Originally Posted by Nicholas
    I agree, it does look like you are trying to sell something.
    But is does sound like you have had a lot of trouble. You must have been seeing real, experienced doctors. Blood and pee tests aren't going to show what is the cause of back pain.
    Like I said (or did I forget?), back pain and ischias were only small part of my problems. Others were breathing problems (asthma test negative), heart problems (ultrasound ok), headaches, migrens (brain mri ok), occasionally leg weaknes (neural impulse test ok), shoulder pain (ultrasound ok), cold arm and poor blood circulation in hands -> thorax outlet syndrome diagnosed, tiredness, dizzyness. And I have been doing a lot of sports all my life. I was good fit, non smoker, normal weigth,... Nothing was wrong according to top medical doctors (MD PTs, doctors, neurologians, orthopedians, PTs..)

    Only chiro and naprapath told me I had something wrong in my pelvis but didn't say what, and they told I had hypermobile spine... Doctors never even examined my pelvis! They did say I had scoliosis, lordosis and short left leg (1cm). Those were found about 22 years ago as I was 13yrs old. But they did nothing... they never examined where those came from!

    Everything is ok now after 15 years of pain. What happened? I got my pelvic joint subluxations corrected. There had been problems since I was a child, but no doctor even examined me.

    And there are millions like me who haven't found help...

    Orrin Mann MD, MPH, Medical Director Department of Occupational Health Multicare Associates of the Twin Cities Rosedale, MN
    Journal of Occupational and Environmental Medicine Volume 40 * Number 5 * May 1998 Letters to the Editor
    Pelvic Joint Dysfunctions
    "Recognizing that very few physicians are trained in diagnosing pelvic joint dysfunctions, my judgment is that these are the most frequently Amisdiagnosed (or nondiagnosed) conditions in the United States, effecting millions of patients annually."
    Last edited by expatient; 01-12-2006 at 05:57 PM.

  8. #8
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    Default

    Sounds frustrating.

  9. #9
    Junior Member
    Join Date
    Mar 2008
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    1

    Unhappy lower back pain

    For the last 2 weeks i had a pain in my hip thinking it was a hip joint but i have recently had an xray and the hips are fine nad my husband had a look at my posture and straight out he said that my pelvis is twisted and just from looking from the xray he can tell ,,now he is no doctor but i do trust him as he has problems in his back as well, Tomorrow i also have a ct scan to see what is wrong with the lower back,,the problem is the pain is not in my back it is in my left hip as like someone has got my hip and pushed it up and out and it sometimes it is very painful ,now i dont know if it is my back or hip. My doctor says it is not my hip as it is fine but the leg movement is very limited, sometimes i can walk and its fine but then it plays up and that is it for the rest of the day its sore and very painful ,,,,I am seeing my doc tomorrow after the ct scan to see what he thinks as well....if anyone would like to comment then you can and let me know on what you think as well.

  10. #10
    Junior Member
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    Default

    about a year ago i started having pain in my left side of my hip to this day it has not stoped i have gone to many doctors and all they have told me is that i need mental help or its in my head or im addicted to narcotics and i just am trying to seek some out i have no help with this . SIJD > is a very painful thing there has to be some way to fix it out there but to this day with tones of research i still cant get it fixed and no doctors beleive me i have had ct mri and i am going to tell the doctor to do an x-ray on me if he will. but i just wanted to write to you guys and tell you that i feel you and know what your going through i deal with this every night. My mom does not believe me Ether because im only 23 and cant have this kind of thing .

    Stick in there someday we will find a fix for it.

    Thanks
    Chris

 

 

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