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  1. #2331
    Member
    Join Date
    Feb 2012
    Location
    Wisconsin
    Posts
    13

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    Hi all,

    4 weeks post op yesterday. I went to doctor and he unlocked the brace all the way! It was locked at 90 degrees the past 4 weeks. I also started PT yesterday. I can now put my toe and ball of foot on ground. I am too afraid to put any weight on it at all.

    The weirdest thing is that about a week after surgery my foot was always ice cold, I started to develop a itchy, red rash on my big toe, it then became painful and spread across my toes. It is now blue colored rash, the surgeon, and two doctors had never seen this before.they said to go to a dermatologist. I was able to get in today. She thinks it is perniosis or chilblains. It is like frostbite, caused by cold and lack of circulation. I know the brace caused this, being bent at that 90 degree angle for 4 weeks. I wish I wouldn't have been so afraid to take it off and have my husband massage my foot and leg, to help the circulation.

    She did do a biopsy of the fourth toe, and had to put two stitches in. Not fun, let me tell you. I will find out the results in a couple of
    days. My leg was sore today from being stretched out from not being restricted at an angle. Back to PT tomorrow. I am going to take it nice and easy. I can't wait to be able to walk again. This surgery has taught me patience and to really appreciate things I hadn't before.

    Maggie

  2. #2332
    Senior Member
    Join Date
    Feb 2012
    Location
    Des Moines, Iowa
    Posts
    83

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    Congratulations, Christine! I know how wonderful it is to finally get a shower!

    Maggie, I'm glad you got the brace off. Sorry to hear about your rash, and I hope it resolves soon.

    Richard, thanks for the bicycle update. I can't wait until I can ride again. I wonder how much it will hurt. Since I have a vertical scar, I'm hoping that I will be able to get a different seat, or just adjust how I sit.

    Tammy, I hope you are doing as well as can be expected. Those first 2 days were trance like for me, just surviving through it. I hope that your surgery went well, and that you have enough pain meds.
    Carol

  3. #2333

    Default

    Hi everyone,
    I haven't been around for a couple of days. My son, who manages a small business I bought last year, sprained his rjght knee Sunday nite. He has been keeping the business running by himself mostly since my injury. So, just last week I hung up my crutches (temporarily) and my son got to start on crutches. So, I had to go to work, drive an hour each way, and be on my feet for 7 hours. My leg is not happy, and today, I am back on crutches in alot of pain. I am 7 weeks post injury. count down to surgeon consult on Tuesday.
    To Christineb, what part of Canada are you in?
    To Scott, I can't imagine being on my feet and being coherent so soon after your injury. You must have incredible pain tolerance.
    Maddog....I had a large tensor brace put on by Dr. 3 days after my injury. My foot and leg was so cold that nite that I had to take it off and it took over an hour to warm up with external heat. Drs. are not careful enuf. Cutting off circulation to an already compromised limb!! I hope your toes heal up soon.
    thanks for info on getting stuff ready before surgery.
    joani

  4. #2334
    Junior Member
    Join Date
    Mar 2012
    Posts
    1

    Default

    Hello everyone - long time reader but the first time I am reaching out to the group. Could use some help here...

    I am 30 year old male. About four years ago I completely tore my hamstring off my pelvis while water skiing. Unfortunately a half dozen doctors misdiagnosed the injury and two years passed until I got an accurate diagnosis. When i was finally diagnosed correctly I elected to have surgery. The surgeons opened me up, extricated my sciatic nerve from the scar tissue and tried to reconnect the hamstring to the pelvis...but the muscle shrank too much and they weren't able to reconnect. The doctors closed me up and away I went.

    Since the surgery my leg has gotten worse - there is now a bump in the back of my leg that wasn't there before. Additionally the leg just doesn't feel good...feels heavy, weak, stiff...etc. To sum it up I feel somewhat crippled. Perhaps that's a bit melodramatic but unfortunately it's the truth.

    It's bothered me enough to where I sought out a highly skilled doctor in NYC that has performed surgeries on people with my situation. Essentially the doctor would use a cadaver 'graft' to bridge the gap where my muscle atrophied (last MRI indicated a 6 CM retraction) and then reconnect the graft-lengthened hamstring to my pelvis.

    I am contemplating having the 'graft surgery' but I am positively TERRIFIED that I will make the situation worse. I'm having trouble locating people that have gotten the procedure done.

    I am very desperately seeking any advice or guidance the group could provide...risks, success stories, etc would be much appreciated.

    With deep and sincere thanks,

    Joe

  5. #2335
    Member
    Join Date
    Mar 2012
    Location
    Canada
    Posts
    23

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    Hi everyone! Well the staples are out but not without some discomfort. Yes that hurt but again another step in the healing process I guess. The last few days have been rough but I am trying to stay positive.

    Joe. Sorry to hear you may go through this twice. I can't imagine. I was 7cm retracted but had surgery within two weeks. I have read about successes with the graft but can't speak first hand about it however I can tell you that my surgery was done by a surgeon who had only done this type of surgery once before and I had doubts and I too was terrified!!! There was a moment just before surgery that I wanted to run (well crutch fast anyway) but trusted in this guy and it turned out OK. I realize it doesn't always work out that way but sometimes you just have to resign yourself and go for it. I wish you much success with this difficult decision.

    Joani - I am in Ontario. If you were closer I would absolutely recommend my surgeon based on my experience and his reputation as a surgeon in general.

    Carol/Ferdle and others.......hope you are all recovering well.

    Christine

  6. #2336
    Junior Member
    Join Date
    Feb 2012
    Posts
    9

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    Hi Joe,
    Sorry you are having trouble. Misdiagnosis is common with this. You need a doctor who has done many of them. It is not a common surgery and people who have a surgeon less experienced seem to have more post op problems. When my wife Judy had this injury in January, I read this entire thread looking for a good surgeon. I noticed patients of
    Dr. Steven Cohen in the Philadelphia PA area had good outcomes. We traveled there and he operated 2/23/12. The results are fantastic. Essentially no pain after the first 48 hours. At four weeks she is walking without crutches and is full weight bearing. He told us he and his research partner have a new study coming out of 50 of this procedure they have performed. That is the kind of experience you will want. I don't know if he does old injuries like yours, but if you are anywhere close to Philly, it would be worth a phone call. His office is in Media, PA. Best of luck. Surgery is definitely the way to go.
    Kevin

  7. #2337

    Default moving right along

    Just an update,
    I tried to send an update a few days ago but heaven knows where that ended up.

    The surgery went well. It looks like I only needed a 3-4 inch incision and pain has been minimal. It hurt me more when I had the original injury.
    The worst part of the surgery for me was the anesthetic.

    Currently I have a knee brace set at 60 degrees, non-weight bearing, not allowed to sit.

    I'll see my doctor tomorrow and see how we proceed from here.

    Thanks for everyone's well wishes.

    Tammy

  8. #2338
    Junior Member
    Join Date
    Mar 2012
    Posts
    1

    Default

    hello everyone ...I just had a MRI on my hamstring re an injury 4 and half years ago ...just need aliitle information ....my Mri read Scarred right Hamstring...would like to know if anything can be done regarding 1. Thickened Proximal Semimembranosus Tendon 16cm................2. Semitendinosus Biceps Femor's Tendon is Attenuated and Scarred.....#. Right Semitendinosus orgin is deficient....would like to know if surgery is advisable or what can be done thank you

  9. #2339

    Default

    I had surgery Monday.

  10. #2340

    Default

    Hi everyone,
    Well The specialist I saw today was frustrating to say the least. This was at a private clinic here in the Vancouver area. Anyway out of the 15 possible specialists I was booked to see him. He has never done this surgery, and knew a friend 20 years ago that had the injury and saw a young guy many years ago. He said he thinks bc my retraction is 11cm and it has been 8 weeks, that any surgery would probably leave me in a worse situation. Possible hip and knee range of motion problems for life. As well as very large incision and the scar tissue might prevent him being able to pull the muscle back, into correct position, anyway. He recommended to continue physiotherapy for 8 weeks and come back and see him to reevaluate. He was def. not (obviously) into repairing.He felt that other muscles will take over and I would be better off. Although he said I would have some limitations for life. Jumping, sprinting among them.( Since I'm a 52yr old overweight woman I probably don't participate in elite sports, so there.!!...my words not his) Now I'm feeling really lost, this is the highest regarded specialty surgery center in Canada!! I told him about this forum, he felt that the reason so many people with this injury are getting surgery in the US is because the US is more business driven than Canada. He did offer to consult with the other surgeons and see if anyone else is interested in pursuing my case. I don't want to go thru more pain and 4-6 months of rehab, but I am so worried about having problems later on. Does anyone know of any studies that have looked at long term, non surgical, patients and how they do? Probably 20-30 years ago and more this surgery wasn't done bc it didn't get diagnosed. There have to be people out there. Help!!, Joani

 

 

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